World Duchenne Awareness Day – 7 Sep 2017

One in 3,500 newborn boys in the world is affected by a rare and fatal diseaseDuchenne Muscular Dystrophy (DMD)Seems like a small group, but the 250.000 patients around the globe think big and have big dreams. Duchenne Parents have set up organisations in their countries, and all of them work day by day to guarantee access to care, to improve research, to educate patients and families.

Everybody around the world will raise awareness and money through Duchenne BalloonThis year the goal is to support a global e-learning platform on Duchenne Muscular Dystrophy: education is the first step to make the Duchenne Dreams come true!

PTC and Genpharm are committed to raising awareness of Duchenne Muscular Dystrophy and as such we are supporting the United Parent Projects Muscular Dystrophy (UPPMD) in their efforts to promote World Duchenne Awareness Day on 7 September. This year to raise awareness they are using the red balloon. To show your support please update your Facebook profile picture leading up to, and on the 7 September, letting your friends and family know you care.


To upload the frame please follow the instructions below.

Go to

Click your profile picture in the bottom left and select your Page

Search for a frame by entering World Duchenne Awareness Day

Choose the frame you want to use from the results

Click Use as Profile Picture