Two Weeks to Go for Rare Disease Day 2018!



 

The global theme for Rare Disease Day 2018 is research

There are over 6000 rare diseases, an estimated 30 million people living with a rare disease in Europe and 300 million worldwide, but no cures and few treatments available for the majority of these diseases. To help change this, patient involvement in research needs to be taken to the next level. Rare Disease Day 2018 offers participants the opportunity to be part of a global call on policy makers, researchers, companies and healthcare professionals to increasingly and more effectively involve patients in rare disease research.

 

Take part in an interactive face paint social media campaign to raise awareness of rare diseases and show your support for the rare disease community! Show your rare. Show you care.

See how you can take part in the #ShowYourRare campaign during the entire month of February 2018 http://download.rarediseaseday.org.s3.amazonaws.com/2018/ShowYourRare_Infosheet.pdf

Watch Rare Disease Day Video Rare Disease Day 2018 official video https://youtu.be/CLs5Q1XUiUg via @YouTube to raise awareness.

Check events close to your home https://www.rarediseaseday.org/events/world