His Excellency Sheikh Nahyan bin Mubarak Al Nahyan honoring Genpharm for their role in raising awareness on Rare Disease and for their contribution on Rare Disease Day

March 3rd, 2017



His Excellency Sheikh Nahyan bin Mubarak Al Nahyan, Minister of Culture and the development of knowledge, president of the UAE Genetic Diseases Association, honored several specialized experts in rare diseases, as part of the annual Emirates International Award for reducing genetic diseases “rare disease category” in its third session.

The Minister reiterated during the tribute, which took place at his palace today, on the occasion of the celebration of the 10th world rare disease day, in the presence of Dr. Mariam Matar, Founder and Chairman of the Board of Directors, that the UAE under the leadership of His Highness Sheikh Khalifa bin Zayed Al Nahyan “may God protect him” to pay attention to the health of citizens and residents alike in addition to the provision of doctors from various disciplines necessary for all diseases and treatments .. I commend the role of the honorees experts and their efforts in addressing the challenges of rare diseases.

The minister pointed out that the association aims to reduce the spread and impact of genetic disorders in the Emirates through awareness and prevention programs and surveys based on research and successful experiences and exchange of knowledge by qualified high human and technical resources.

For its part, expressed Dr. Mariam Matar its deep appreciation to His Excellency Sheikh Nahyan bin Mubarak Al Nahyan for his patronage and support for the activities of the Assembly .. pointing out that the Assembly operates through its various programs to raise awareness for the prevention and reduction of the spread and rare genetic diseases.

She said that 80 percent of rare diseases are caused by “genes” and that 50 percent of infected children, and there are about seven thousand species of rare and genetic diseases, noting that there are 350 million people around the world suffer from rare diseases.


Dubai TV news https://www.youtube.com/watch?v=q125Qw7k3JA&feature=youtu.be

Emirates News Agency http://wam.ae/en/details/1395302600768